Michelle Ward was joined in the studio by Brentwood local, Sarah Reed to talk about her Fundraising Event for Duchenne Muscular Dystrophy. Sarah is raising money along with Lauren and Jo for the charity after meeting a little boy called Fraser who has the condition. DMD is a fatal life limiting muscle wasting disease with no known cure.
If you would like to sponsor Sarah and her team for the 8th June abseil fundraiser all details are here https://www.justgiving.com/fundraising/awesomeabseil-actionduchenne
What is Duchenne muscular dystrophy?
Duchenne muscular dystrophy is a muscle-wasting condition caused by the lack of a protein called dystrophin. It usually affects only boys. About 100 boys with Duchenne muscular dystrophy are born in the UK each year and there are about 2,500 boys and young men known to be living with the condition in the UK at any one time. For the general population, the risk of having a child with Duchenne muscular dystrophy is about one in every 3,500-5,000 male births.
Duchenne muscular dystrophy is a serious condition that causes progressive muscle weakness. Owing to the lack of the dystrophin protein, muscle fibres break down and are replaced by fibrous and or fatty tissue causing the muscle to weaken gradually.
Action Duchenne is the UK charity dedicated to finding a cure or treatments for Duchenne & Becker muscular dystrophy while improving the lives of everyone affected by the condition. We fund cutting edge research into Duchenne, campaign for better care & run vital projects for our community.